End of life care
The term ‘end of life’ usually refers to the last year of life, although for some people this will be significantly shorter. The term palliative care is often used interchangeably with end of life care. However, palliative care largely relates to symptom management, rather than actual end of life care.
The RCN believes that end of life care is not just the responsibility of specialist nurses and teams, rather that everyone should be able to care for a loved one as they reach the end of their lives, including all nurses and health care support workers in all settings, the patient’s family as well as members of the community.
End of life care is not just the practical and technical delivery of care provided to the individual who is dying, but also refers to the support and information available both to them and the people who are important to them, e.g. bereavement support.
Due to an unacceptable variance in the availability of services and professional expertise available to patients, many people are experiencing poor care at a time when they and their families need it to be at its best. The RCN is committed to ensuring that nurses working with people who are dying are given the support they need to understand their role.
Bounce Back Boy is a film that explores the life and the death of 23 year old Josh Cawley following catastrophic injuries inflicted by his birth parents. It explores how his, and his adoptive family's complex needs were inadequately identified, assessed and supported by health and social care professionals.
The original play was written by playwright Brian Daniels, in conjunction with Josh’s adoptive mother Lynn Cawley, who had to co-ordinate his care whilst fighting for the system to recognise his needs.
- NICE, October 2019. NICE publishes guidance for organising and delivering end of life care services
- GP Online, 23 October 2019. How simple steps can help practices improve end-of-life care
- BBC News, 24 August 2019. Two end-of-life care nurses explain what the job is really like
- NICE, July 2019. NICE updates its guidance for end of life care for infants, children and young people with life-limiting conditions
Related to end of life care:
Professional lead for end of life care:
Essential guidance for staff involved in care after death, especially nurses working in the community and care homes. This guidance has been co-created and endorsed by the RCN.